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Let’s develop the cure for AGO syndrom

Who We Are  —  

About AGO Alliance Poland

The AGO Alliance Poland is a non-profit organization dedicated to supporting research on the ultrarare genetic disease - AGO syndrome (mutations in genes Ago1 and Ago2), as well as raising awareness about the conditions and supporting kids and families affected by the syndrome.

Read more about us

AGO syndrome

AGO syndrome is a recently discovered ultra-rare genetic condition caused by mutations in the Ago1 and Ago2 genes. Full names of conditions is AGO1 syndrome and Lessel-Kreienkamp (LESKRES) syndrome respectively.

Learn more about AGO syndrome

Our research

If you would like to join our mission of finding the treatment for AGO syndrome (mutations in Ago1 and Ago2 genes), please get in touch: contact@agoresearch.org

Explore our research

Sisters organization

Memberships

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Parternships

AGO Alliance Poland - Country Map

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About Us

We are a family of 5 with the eldest son, Albert, affected by AGO syndrome. We aim to develop a treatment for kids suffering from AGO syndrome that will improve their quality of life and offer a cure.

 

Please get in touch with us (Aldona and Aleks)  if you want to support us in our mission to develop a cure.

If you are a caregiver of a child affected by AGO syndrome, please join our online community in AGO Alliance.

Contact: contact@agoresearch.org

Konkurs: konkurs@agoresearch.org

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Bank Details

AGO Alliance Poland

ul. Swieradowska 51B,

02-665 Warsaw, Poland

Account number: 

18 1600 1462 1717 3293 5000 0001

International transfers:

SWIFT: PPABPLPK (BNP PARIBAS)

IBAN:PL18 1600 1462 1717 3293 5000 0001​

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