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Media releases
[PL] Podcast interview with dr Aldona Chmielewska and Wiktoria Bieniek about the history of foundation, its research plans for the cure development and spreading awareness about rare diseases
[PL] Press release on the competition 'Youth for Rare Diseases' held in 2025-2026. The main award is the visit of Prof.Ambros, Nobel prize laurate at the winning team's school.

[PL] A story of parents, science and young people who — with the support of a Nobel laureate — are trying to change the future of children living with ultra-rare diseases.
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