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Media releases

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[PL] Podcast interview with dr Aldona Chmielewska and Wiktoria Bieniek about the history of foundation, its research plans for the cure development and spreading awareness about rare diseases

[PL] Press release on the competition 'Youth for Rare Diseases' held in 2025-2026. The main award is the visit of Prof.Ambros, Nobel prize laurate at the winning team's school.

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[PL] A story of parents, science and young people who — with the support of a Nobel laureate — are trying to change the future of children living with ultra-rare diseases.

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About Us

We are a family of 5 with the eldest son, Albert, affected by AGO syndrome. We aim to develop a treatment for kids suffering from AGO syndrome that will improve their quality of life and offer a cure.

 

Please get in touch with us (Aldona and Aleks)  if you want to support us in our mission to develop a cure.

If you are a caregiver of a child affected by AGO syndrome, please join our online community in AGO Alliance.

Contact: contact@agoresearch.org

Konkurs: konkurs@agoresearch.org

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Bank Details

AGO Alliance Poland

ul. Swieradowska 51B,

02-665 Warsaw, Poland

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Account number: 

18 1600 1462 1717 3293 5000 0001

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International transfers:

SWIFT: PPABPLPK (BNP PARIBAS)

IBAN:PL18 1600 1462 1717 3293 5000 0001 

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